As you can see by my tmom name I live everyday dealing with spina bifida. I myself don’t have sb but my youngest does. Everyday is different,everyday you make a choice to be happy and live life or to dwell on the what if’s and let it bring you down. I try my best to live it up!
DD was born 2 1/2 years ago and it’s been a roller coaster to say the least. From 19 weeks pregnant there have hundreds of doctors appointments, scheduled as well as un scheduled surgeries, Ct scans, X rays, castings,braces,wheelchairs, walkers, it seems endless. Yet through it all she has basically accomplished everything the doctors said she won’t and can’t do. It’s a tough pill to swallow when the doctors tell you your innocent child has a serious complication and it will affect them for their entire life! You feel as if all your dreams have been crushed, little do you know that new dreams come into play and the joy you will soon feel is like no other feeling you’ve ever had.
After your new reality sets in you begin to strategize. You begin to see life differently and amazingly learn to cope during this life changing time. After all, God has given you a gift and what a beautiful gift it is!
This little girl is so determined (stubburn at times, but hey!) and she will let nothing stand in her way, like they always say “if there’s a will there’s a way.” My little one might have a bit of a swag in her steps when she walks, people might stop and stare, strangers might ask rude questions, it might take a little longer to get from point to A to B, but she is walking and that is something the doctors said she would NEVER do!! I stood at my front porch with tears in my eyes the day she took her first steps while using her little red walker. They were tears of mixed feelings. It hurt to see her have to struggle to do something that most take for granted and also were tears of joy since from day 1 we honestly didn’t know if this day would ever come. She has given me a new outlook on life and I am so honored to have her as my daughter…Keep it up little one you are amazing!